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What a Good Relationship With Your Doctor Looks Like

Cup of tea, glasses and an x-ray form, to illustrate getting good medical help © livingpositivelywithdisability.com

Have you ever walked out of an appointment with your GP and wondered what you paid all that money for? Have you ever felt like they didn’t really listen, palmed you off, even scoffed at your symptoms?

Getting good medical help is so important, not just to make it a more pleasant experience for you, but to ensure that you are getting the right preventative checks, early intervention and an informed, thorough management of illnesses.

What I have covered below is by no means an exhaustive list and I am sure there are plenty of people who know a lot more about it than me, but here is what I have learnt so far in my life (and medical) journeys:

I’ve said before that there are doctors and then there are doctors. Due to knowledge base, preference and/or personality, every doctor is different and not all of them can give you the help you need…

The Right Doctor

I remember the first time I met my current GP.

My husband had bundled me into the doctors office. I was in tears. I was distraught. I had been trying to be strong for so long, bottling things up inside, that I had become a tight wire of anxiety and I was about to snap (or maybe I already had).

My GP took the time to really listen to me and go over all the aspects of my situation and all the ways I could seek help. He set up a management plan and he referred me to the people who would make that management plan happen. He took extra time to make sure everything was in place for me before he let me leave his office.

He rang me to make sure I was OK in the following days and he booked me for another appointment two weeks after the first.

Unfortunately, it takes a very special doctor to handle the above situation in the right way. I say “unfortunately” only by virtue of it being so rare. Unfortunately, low level negligence is normal, but it is not right.

Scott has been my GP for about 7 yrs now. I had a few before him but he is the right mix of dedication, genuine care for patients, holistic overview and ongoing learning that I need from my GP. If you, like me, are a (let’s be honest) high maintenance patient, it is doubly important that you too have a doctor who is open minded, continually learning from the current medical literature, genuinely cares about their patients and is willing to go the extra distance, every time.

Everybody needs something different. Some of my previous GPs were nice people, fine doctors, but just not the right fit for me. You need to find the right fit for you and to not be afraid to keep looking if the fit isn’t right. Your health is far too important to put it in the hands of someone who perhaps doesn’t care for you in the way that you need, or even someone who doesn’t have the same outlook as you. GP-patient relationships are intimate, sensitive things and good communication and trust is so important.

A good doctor is a consistent doctor. The worst thing you can do is just see anyone who’s available (unless you can’t help it, which happens). You need (using that word very purposefully) a doctor who knows you, your medical background, your family and personal situation. All these factor are incredibly important when making decisions about the medical management of a patient. And with that knowledge base, trust grows. You learn to trust your doctor and put faith in their decisions and they learn to trust you and do things for you that they wouldn’t necessarily do for a stranger walking in their door (like not charge you because they know you came in last week with the same complaint, charge the whole family as one person or order additional tests a new doctor wouldn’t consider because they don’t know the whole picture). Building that relationship over time with a good GP is important and beneficial in so many ways.

A good doctor should…

  1. in all dealings with you, show you respect as a fellow human being – you may not have their degrees, but that does not make you lesser.
  2. not be rude, or even impersonal.
  3. not talk at you, but with you.
  4. make you feel at ease.
  5. listen to you and express empathy.
  6. not hurry you through the appointment because they’re running behind schedule (that’s their issue, not yours).
  7. not discount what you say out of hand but instead discuss all aspects of what you are experiencing, what their take on it is, and why.
  8. explain things thoroughly but clearly (after all, you probably don’t have a medical degree and, if you’re anything like me, you may have barely passed science in high school, too).
  9. order appropriate follow up tests and investigations.
  10. contact you about important test results, even if by text and even if the results are clear. In this way, a good doctor acknowledges the stress and worry of waiting for test results and seeks to reassure their patients.
  11. ring you in the days after the appointment to check in if you have presented with mental health issues for the first time, or presented with borderline hospitalisation symptoms. A good doctor’s care of their patients goes beyond their door. A good doctor doesn’t just want your money; they have your back.

The best advice I could give you for finding long term high quality medical care is to create a social web of good information and good services. If you’re happy with one service provider, ask them to recommend others. If your doctor leaves the practice, ask the receptionist (who you’ve developed a really good relationship with, of course!) to recommend another. (Gently) grill everyone you meet, from social workers to pharmacists. Make the most of your existing relationships and contacts to make the next connection you need.

A lot of the time you have to be super assertive and ask the right questions, as I have learnt from dealing with medical professionals for my disabled child over the last 14 yrs, but there are definitely people out there who are more than worth their weight in gold when it comes to giving you help. 

When it’s time to move on

Not happy with your doctor but not sure whether you should look for someone else?

I encourage people to take part in their diagnosis, listen to their inner compass when it tells them something doesn’t sound right and seek second, third (or even more) opinions when those doubts arise.

Discuss your situation with friends and family if you feel like you need a sounding board for your concerns. Maybe go online and chat with support groups (using your judgement to make certain they are informed and actually supportive) to get the ‘inside story’ and possibly even recommendations for other specialists (or at least how to access that information).

Making decisions: parenting exercises

Something that I’ve found that works for me when making tough decisions that you could try if you like the sound of it, is what I call a parenting exercise: I pretend that I (Lowen) am the parent of me (Lowen) – what would I tell myself? “Stop being silly”? (no, that would be that pesky, negative inner voice in your head, not your parenting self). You may find your parenting self might say, “Hmmm, maybe you should get a recommendation and go and see someone else for a second look,” or, “Try this medication for a few weeks and see if it helps, like the Specialist said it would”, or “I think you’re over thinking it, love,” or, “Maybe sleep on it and see if you still have reservations in the morning”. Our parenting selves tend to be more logical and also more loving than the rest of the jumble of thoughts in our head. It can be an effective way of stepping back and looking at the situation in a clearer light.

Being part of the process

These are all ways of making a measured decision about how you want to progress in managing your illness. And that bit I just highlighted is so important – we shouldn’t just be treated by a doctor – we should always be part of the decision-making process.

If you are coming away from your appointment feeling like you weren’t part of the process, it probably is time to move on.

You don’t have to put up with substandard services just because they are all that’s been offered to you.

Get a second opinion. Ask friends and trusted professionals for recommendations.

Keep looking until it feels right.

 

Best of luck, hope you hit gold with your doctor and they are caring and informative.

 

For related articles, click on the titles below:

How to Survive a Day Stay in Hospital

How to Be a Good Support Person at a Medical Appointment

And click here to get a ray of sunshine in your inbox, by signing up for the monthly newsletter with new, free tips for living positively made just for subscribers.

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P.S Did you know that you have legal rights regarding the medical help you recieve? Come this way for more information.

The post What a Good Relationship With Your Doctor Looks Like appeared first on talkhealth Blog.

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9 People Describe What It’s Really Like to Have Eczema – SELF


SELF
9 People Describe What It's Really Like to Have Eczema
SELF
Most people have experienced dry, itchy skin at some point in their life. But for people who deal with the symptoms of eczema, dealing with dry, irritated skin can reach a whole new level. Eczema is the term used to describe a group of chronic skin

eczema – Google News

9 People Describe What It’s Really Like to Have Eczema – SELF


SELF
9 People Describe What It's Really Like to Have Eczema
SELF
Most people have experienced dry, itchy skin at some point in their life. But for people who deal with the symptoms of eczema, dealing with dry, irritated skin can reach a whole new level. Eczema is the term used to describe a group of chronic skin

eczema – Google News

9 People Describe What It’s Really Like to Have Eczema – SELF


SELF
9 People Describe What It's Really Like to Have Eczema
SELF
Most people have experienced dry, itchy skin at some point in their life. But for people who deal with the symptoms of eczema, dealing with dry, irritated skin can reach a whole new level. Eczema is the term used to describe a group of chronic skin

eczema – Google News

9 People Describe What It’s Really Like to Have Eczema – SELF


SELF
9 People Describe What It's Really Like to Have Eczema
SELF
Most people have experienced dry, itchy skin at some point in their life. But for people who deal with the symptoms of eczema, dealing with dry, irritated skin can reach a whole new level. Eczema is the term used to describe a group of chronic skin

eczema – Google News

Managing Eczema: Are New Treatments Like Eucrisa Worth It? – MedShadow (blog)


MedShadow (blog)
Managing Eczema: Are New Treatments Like Eucrisa Worth It?
MedShadow (blog)
They are generally inexpensive, and for the vast majority of patients, that's how we start treatment,” explains dermatologist Amy Paller, MD, director of the Northwestern University Skin Disease Research Center in Chicago. American Academy of

eczema – Google News

What does today’s tech-savvy, self-caring, knowledgeable patient look like?

There’s little doubt that the 21st century patient is very different to the 20th century patient of my era. Much has changed and technology has been the key driver for change.

So what does the modern, tech-savvy, self-caring, all-knowing patient look like? What part will they play in shaping the industry in the future, and how should pharma utilise these patients?

Today’s patient is more informed. The Internet provides access to a wealth of information enabling patients to better understand their condition. It has empowered them. They talk with like-minded patients in online communities, and engage with others across social media channels such as Facebook and Twitter. They are honest and open about their physical and emotional symptoms, sharing information and supporting each other.

Responsive websites that adapt to the device used, mobile ready websites, and faster 4G and Wi-Fi connectivity now provide quick and easy access to health content at any time from virtually anywhere, with millions of pages only a search-string away.

modern, tech-savvy, self-caring, all-knowing patients

As for the future?

Research has shown that informed patients are more proactive in decisions about their health often leading to improved adherence and better health outcomes. Therefore, patients should be at the centre of what happens next. Pharma need to engage with, and listen to patients so they can provide them with what they want and need.

There’s much talk about patient centricity. Now is the time for healthcare and pharma to become truly patient centric by involving the patient at the very start and the very heart of everything they do.

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How a skin condition like psoriasis can affect your body image and what to do about it

Your body image is how you perceive yourself when you look at your reflection in the mirror or when you think about the way you look.  How accurately your body image matches the way others actually see you is dependent on many factors such as gender, media and cultural influences and illness.

Having a skin condition like psoriasis, vitiligo or eczema will most definitely affect your body image.  It’s important because a negative body image is associated with an increased risk of depression, low self-esteem, eating disorders and even suicide.

In people with psoriasis, a negative body image can have even more adverse consequences.  In 2014, researchers at Copenhagen University Hospital interviewed 8 people with psoriasis to see how the condition affected body image. They found a link between a negative body image and increased tendency to cover up, sexual inhibitions and reduced exercise.

Research in the general population suggests body image is remarkably stable throughout life, despite changes in appearance as we age.  When you have a skin condition like psoriasis your physical appearance can change drastically from month to month.  Sometimes your condition may be in remission but even then it’s likely your body image will remain negative rather than improving as your skin does.

Research tells us that people who develop psoriasis later in life are far less likely to be affected by anxiety, stress and depression than those who were diagnosed in their teens and one theory for this is their body image developed before their skin was affected.  If this is the case, then your body image is based on the way your skin looked during your formative years.  If your psoriasis was severe in your youth, you may be left feeling badly about the way you look even when a treatment has been successful and your skin has improved.

But if you have a negative body image can you do anything to change it? The answer is a definitive yes, but it will take a bit of work and effort.  There are many self help books (try Cash as a good starting point) and Changing Faces is a good resource for anyone with concerns about their body image.  Visit my blog www.copingwithpsoriasis.com for more advice on how to cope with psoriasis.

It’s also encouraging to know that whilst body image doesn’t seem to change over time – unless we actively engage in strategies to change it – as we age we place less importance on appearance and thus may be less unhappy about the way we look as we mature.  Well that’s something to look forward to.

Jo Jenkins

www.copingwithpsoriasis.com

Reference

Cash, T. (2008) The Body Image Workbook: An Eight-Step Program for Learning to Like Your Looks. New Harbinger.

 

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What would you like to read about? 

As a reader of eczema blogs, I wondered what you wanted to know most about my eczema journey. Is it about products? Is it about my diet? Is it my go tos for different types of eczema? Clothes? Feeling self-conscious?  There are so many aspects to eczema that it would be great to get your … Continue reading
My Eczema Tales

Looks, toasts and tastes just like REAL crumpets!

This week we tried the new Newburn Bakehouse Gluten Free Crumpets and we were very impressed. Thank you for sending us a free sample :)

Look, toast and taste just like 'real' crumpets! Newburn Bakehouse #GF crumpets

Look, toast and taste just like ‘real’ crumpets! Newburn Bakehouse #GF crumpets

So what’s in them? The ingredients…

These delicious crumpets are not only gluten free but also dairy free. Those with a cow’s milk allergy will know what I mean here – many normal wheat containing crumpets still contain dairy so it’s been a long long time since I ate anything like a ‘normal’ crumpet. My dairy allergy started much earlier than my problems with wheat so this is good news for both coaliacs and those avoiding milk and dairy for whatever reason.

Here are the ingredients: Water, Rice Flour, Maize Starch, Potato Starch, Raising Agents: Sodium Bicarbonate, Ascorbic Acid; Whole Egg Powder, Egg White Powder, Salt, Preservative: Calcium Propionate (added to inhibit mould growth); Stabiliser: Xanthan Gum; Natural Flavouring.

Be aware these do contain egg so are not suitable for anyone with an egg allergy

Something in all freefrom baked gluten free food exacerbates my eczema and can cause a flare of nodular prurigo and I suspect it’s either the Calcium Propionate or the Xanthan gum. These two ingredients are not going to go away any time soon and I wasn’t too itchy so I would eat these as a treat. Crumpets are a treat food anyway so what’s not to like?

Are they healthy?

I try to eat a processed food free diet most of the time so that means lots of fresh fruit, vegetables, meat and fish. But everyone needs treats sometimes. And treats are not meant to be healthy… right? It’s why when I bake a cake or flapjacks I end up eating the whole lot! Don’t know why I get a tin out to store them in really. It’s hardly work it… ha ha.

I am also pleasantly surprised at the simplicity of this product. There isn’t a huge long list of unidentifiable ingredients and it’s not high in salt or sugar either and at just 144 calories a crumpet I’m sold!

Firstly, ‘normal’ wheat and gluten containing crumpets nutritional information

Nutritional Info for Warburtons normal wheat containing crumpets

Nutritional Info for Warburtons normal wheat containing crumpets

Looking at these normal crumpets you can see that the fat and sugar content is marginally lower. Just 98 calories per crumpet.

So whilst there is a slight increase in fat and sugar both the normal and gluten free crumpets have similar nutritional profiles. The gluten free was just slightly higher on all the warning measures, including salt but this is probably to be expected when you’re baking without gluten. When you’re looking at a baked product like a crumpet you’re not looking for zero calories you’re looking for that crumpet heaven. The gluten free variety were still only 121 calories per crumpet which isn’t bad for a tasty treat snack.

Gluten free baked goods have had a bad reputation in the past for being high in fat, salt and calories and sometimes 4-5 times the fat content but things are obviously improving.

Nutritional Info for Newburn Bakehouse gluten free crumpets

Nutritional Info for Newburn Bakehouse gluten free crumpets

How did they taste?

They were so tasty and really, they were just like how I remember crumpets should be. A bit of a crust but soft and fluffy inside and it’s even got those holes. Memories of Saturday afternoon walks with my family and tea in front of the telly, a large board resting on two chairs and hot buttery crumpets while we watch Dukes of Hazard. Ahhhhh crumpets…

We will definitely be buying these when we can find them in the shops but oh how I mourn butter.

Even ‘husband who can eat everything’ enjoyed them. Just as well as I am not good at sharing. He had this with butter (the swine) and marmite (yuk!) and I settled for just Flora Dairy Free spread on the first one and then this morning, the ultimate crumpet taste sensation…

Soft boiled egg with dippy crumpet soldiers! The soldiers were rendered unfit for battle once soaked in egg, they did go a bit soggy, but the whole combination was just so tasty. I was licking my fingers and the plate to hoover up every last crumb.

Top marks to Newburn Bakehouse. These are amazing!

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